I've had a lovely Christmas, with a long break off work, and time spent with family and friends. Drank mulled wine. Ate mince pies and cream. Salvaged a turkey that was in the oven for 3.5 hours before I noticed that the oven was on a grill setting (and a low grill setting at that).
But it's also been the Christmas when I've struggled with one of the after effects of having had cancer, one which seems to be getting worse as time goes by. I find it very hard to put into words, and the best I can do is to say that it's the opposite of what I wrote about in this post. But it's vaguer. I can't put my finger on it. If I was making a film, I'd have myself looking in a mirror, stretching out a finger to trace my features, and then the image in the mirror dissipating into vapour, with a mocking laugh as she disappeared.
It boils down to a re-figuring of the shape of life, in terms of time. That happens as we get older, and we all struggle with it. You can tell that by the ridiculous way we are constantly surprised by the normal steady beat of time. We express amazement when another year passes by. When we have a birthday or anniversary that ends in a 0, we say "how can that be?" In our hearts, we're all 23 year olds. We bore the children of our friends by talking about how they've grown. Of course they've grown! Duuh! It would be odd if they hadn't. Somehow we all feel we're fighting against the passage of time. Perhaps when you've had cancer, that rational knowledge - the clock is ticking and life is finite - passes into lived experience. I don't like it.
What's changed for me is that a little note of urgency has been added. It's only little. It's imperceptible most of the time. But it's there. And it's got a grim irony, because the more you feel you need to be making the most of time and holding onto it, the more time slips away from you.
I find it hard to relax. I plan things, and they're nice, and I do them, and then I want to move on to the next thing. Perhaps I want to create that memory, tick that box, and then make sure I get on with the next one. You never know how many boxes will fit into the timeline, and you want to get as many of them ticked off as possible.
I find it hard to be in the moment. This is a modern day complaint, isn't it? I'm sure many of you will identify with this. I read articles on Mindfulness, and I totally believe in the value of it. But I can't do it. (So please don't leave me any handy hints in the comments.) I'm always thinking about what needs to get done. I have a false sense that when I've done everything, then I'll be able to relax and smell the roses. But I know that I'm never going to get to the bottom of the list. It's not even a real list, where I can tick things off. It's just a ghostly feeling of a list, that's always there. I've had periods of my life, long ones, where I've understood that you don't wait to smell the roses, that the roses are all there along the way releasing their sweet perfume if you'll only understand that the point is to smell them as you go. But at the moment, I can't seem to do that.
I build time into my life in positive ways. I go to yoga once a week, I walk the dog, I have hot baths, I spend regular time with people who energise me. But I still feel the tightness of the Time Thief on my back. He feels like he's got a large clothes peg, which he puts over the vertebra at the bottom of my neck. It hoicks my shoulder blades up and in. That peg seems to be there, and tighter, more and more.
I once picked up a leaflet which talked about the after-effects of cancer. On the list of after-effects it mentioned "a fore-shortened sense of life". It was such a relief to read that. Yes. Those words summed it up perfectly. It's always such a moment of comfort and sustenance to feel "I'm not the only one - this is a 'thing' - this is normal". I'm grateful for that leaflet, but it didn't tell me what I could do about it. So I've made myself a little word-joke, and I think of myself as living "life on the foreshore", but I'm a bit stuck as to what I can do to get myself a little further back onto dry land. (Please don't recommend a book on Mindfulness at this point.)
Postscript: In the writing of this post (how awesome is the process of blogging?), I realised that, since this is a 'thing' and since I'm not the only one, there must be wisdom out there about it. So I've googled my local Maggie's, and I'm sure that is going to be a good place to start. It's so odd that I haven't thought of that before. My local Maggie's is a 5-minute walk away, and of course it's the obvious resource. That's the thing about the Time Thief, though. He robs you, with his evil clothes peg, of the time and space you need to think about how to help yourself. He's a very clever devil. He must be clever because even Google can't pin him down (and Google can do pretty much everything). I googled "grinning devil with clothes peg" to see if I could find an image to end this post with, and it didn't throw up anything appropriate.
So very poignant. A beautifully written piece, such lovely and evocative turns of phrase. I am so sorry that you have had to deal with cancer and its aftermath. I haven't had this particular problem, but I've had others, and I know what you mean about time passing.
ReplyDeleteWhat a fine post. Thank you for your openness.
ReplyDeleteIs it a form of anxiety? I hope you find something that helps.
ReplyDeleteYour post really resonates for me as well. I have not had cancer, but lost my Mum to late-diagnosed uterine cancer when she was 49 and I was 23. I am 40 now - my next significant birthday will be one my Mum never made it to. And I feel the swiftness of time quite painfully, as I look around and my children have gone overnight from toddlers to infants to juniors . . .and will no doubt be teenagers in the blink of an eye. And it makes me feel . . sad? melancholy? I'm not sure what the word is. 'The days are long but the years are short' - this quotation I think I found in Gretchen Rubin's book 'The Happiness Project' and her writing about this was the first real handle I had seen on it.
ReplyDeleteLAWKS did I miss your umptieth? **FEELS VERY BAD**
ReplyDeleteI totally get your post, and I am just ageing, nothing more life-threatening. I think having elderly parent/s doesn't help. One of J's classmates has a grandmother who is about 18mths older than me. I bet that child's mum lives in the moment...she probably has a grandmother or more of her own.
Is the thing about living in the moment when you don't actually think about much else? I've been doing a bit of that with dh home for only a couple of weeks for Christmas before heading back to the US yesterday for another month. Too busy to think about whether the choices we had made about how we spent our time were the best ones, we just did what we did. More drinks parties than I would have chosen to go to, though I love to be invited and thoroughly enjoyed them all. Now he's gone and the warmth and colour and light of Christmas seems to have gone too. Oh, and on the melancholy front, there's an Abba song called "slipping through my fingers" or something that brings me out in galumphing sobs just to think about.
Btw, self help books don't. As eny fule no. And January is never a good time. But I do like a foreshore, apart from a British one this week which would frankly be a dangerous place to be.
Love, lots,
Josephine x
No solutions I'm afraid but lots of empathy. I completely get what you're saying. I haven't had cancer but I've had my own health problems now for over a year and what it brings is a frightening sense of your own mortality. Plus I find it very hard to be in the moment and enjoy the moment, because I'm still feeling bad. You put it all into words so well, though, more than I ever could. xx
ReplyDeleteI lost some important people in my life and did at times feel that urgency of a foreshortened life, especially after my older sister died suddenly. I think my baby sister feels this very much and rushes through an imaginary to do list without properly smelling the roses. I now lie back in the roses and smell them all the time and that is another opposite. We both have to find the middle ground.
ReplyDeleteThank you, Iota, for being so open. What a beautiful post. I hope you'll find some answers or support at Maggie's - or elsewhere. xx
ReplyDeleteI have been struggling with this very same feeling. I haven't had cancer but you've very eloquently described the feelings I've been experiencing. Thank you for sharing.
ReplyDeleteWe all learn about mortality in different ways, I think. Some remain blissfully unaffected by it until late in life, some much earlier. I had an experience in my late teens that rocked my foundations for almost 20 years, and unfortunately there were no brochures with words of wisdome for my situation. How did I learn to cope? This too is different for everyone. For me it was learned over time, through experimenting, but can be distilled down to 'acknowledge and move on'. I am not giving you this advice, just sharing what I learned worked for me.
ReplyDeleteThis has been a magical read, really powerful stuff, Iota. From the grimace I made at the idea of how I'd feel if I did the turkey-under-a-low-grill thing, to the nodding along, understanding the picture you write so well, without ever having had cancer.
Here, you write: "I'm grateful for that leaflet, but it didn't tell me what I could do about it. So I've made myself a little word-joke, and I think of myself as living "life on the foreshore", but I'm a bit stuck as to what I can do to get myself a little further back onto dry land." I wonder if one of your contributions to this world will be to come up with strategies for 'what one can do about it', for future people to read with gratitude.
Beautiful, poignant writing. xox
Beautiful writing. So brilliantly expressed. I think I have had the time thief on my back all my life for no reason other than he just turned up one day and never left. I find it very hard to just be. I wish I could. xx
ReplyDeleteI haven't had cancer, but did lose my dad to it and my mum is a BC survivor, so I'm very familiar with the whole 'sword of Damocles' sort of feeling - especially since I am at significantly heightened risk myself now. Once you have an experience that highlights your mortality (or the mortality of someone you love) you can never go back to living in your safe world where this sort of thing only happens to other people. I try all the time to do that 'live in the moment' thing, but it is a constant struggle with invasive thoughts. Thank you for writing about this and I truly hope you'll share with us if you learn something useful or helpful. xo
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